Links for hospice, palliative care, materials for physician educators, advance directives, living wills, end-of-life organizations, and other resources for improving the care of the dying.
The result of a joint survey conducted by the American Association of Retired Persons North Carolina and The Carolinas Center for Hospice and End of Life Care. The survey dealt with end of life issues and was mailed to 3,586 North Carolinians over the age of 50.
Format: Website
Provider: American Association of Retired Persons (AARP)
Adobe Acrobat Reader required
AHRQ research findings intended to assist physicians and other health care professionals guide patient decision-making for care at the end of life.
Format: Website
Provider: Agency for Healthcare Research and Quality (AHRQ)
Consumer focused patient rights document on medical decisions, advanced directives and what you should know about your rights. Specifically geared towards how advance directives work in North Carolina.
Format: Website
Provider: North Carolina Health Care Facilities Association
Hospice for the Carolinas was formed when Hospice of North Carolina and Hospice of South Carolina combined their resources by merging in 1993. With over 100 hospice programs in both states, and over 50 associate members, the Center is a comprehensive resource to improve hospice, palliative, and end-of-life care, while promoting recognition of the dying process and death as a natural part of life. The Center has offices in Cary, NC and Columbia, SC.
Format: Website
Provider: Carolinas Center for Hospice and End of Life Care
Forms for professionals and consumers provided by the Centers for Medicare & Medicaid (CMS), formerly known as the Health Care Financing Administration (HCFA).
Format: Website
Provider: Centers for Medicare & Medicaid Services
The Institute seeks to improve care at the end of life through interdisciplinary scholarship, teaching, and outreach. It provides a context through which education and research can enhance public awareness, guide public policy, and improve services for the dying and their families across a continuum of care. Based at the Divinity School, the Institute's mission includes collaborative research, cross-disciplinary education, and practical training for caregivers - whether clergy, health care providers, or lay volunteers.
Format: Website
Provider: Duke Institute on Care at the End of Life
A central repository for educational materials and information about end of life (EOL) issues and to assist physician educators and others in locating high-quality, peer-reviewed training materials. This Website supports the identification and dissemination of information on EOL training materials, publications, conferences, and other opportunities.
Format: Website
Provider: Medical College of Wisconsin
This report opens a new and important window on the day-to-day practice of the role of the law and hospital counsel in end-of-life decision making in hospital settings. Adoption of its sensible suggestions for general educational efforts and specific case engagement between hospital counsel and clinical staff appears likely to yield improved outcomes for patients and their families. Also available in print: WB310 Z83e
Format: Website
Provider: Milbank Memorial Fund
Hospice Foundation of America is a not-for-profit organization that provides leadership in the development and application of hospice and its philosophy of care. Through programs of professional development, research, public education and information, Hospice Foundation of America assists those who cope either personally or professionally with terminal illness, death, and the process of grief. To search for a hospice in your area, click
here.
Format: Website
Provider: Hospice Foundation of America (HFA)
A collection of full-text journal articles and letters for the public from JAMA and the Archives journals; available since 1998.
Format: Website
Provider: JAMA
Use the search box to search for "end of life" or "last acts."
Format: Website
Provider: Robert Wood Johnson Foundation (RWJF)
Medical Futility and the Evaluation of Life-Sustaining Interventions
Edited by Marjorie B. Zucker, this publication surveys the clinical, ethical, religious, legal, economic, and personal dimensions of decision making when the choice is either to extend costly medical treatment of uncertain effectiveness, or to terminate treatment, thereby ending a patient's life.
Format: Book
W50 M467 1997
Locate a hospice program.
Format: Website
Provider: National Hospice & Palliative Care Organization (NHPCO)
Bill Moyers goes from the bedsides of the dying, to the front lines of a movement to improve end-of-life care. Two years in production, this four-part, six-hour series crosses the country from hospitals to hospices to homes, to capture some of the most intimate stories ever filmed and the most candid conversations ever shared with a television audience. The series was produced by Public Affairs Television, Inc. and presented on PBS by Thirteen/WNET New York. Videotapes of the series may be ordered by calling Films of the Humanities at 1-800-257-5126. On Our Own Terms will be followed by
With Eyes Open, a four-part national series that is designed to spark community conversations about grief, mortality, caregiving and the afterlife.
Format: Website
Provider: Public Broadcasting System (PBS)
This report describes an advance in clinical policy for care at the end of life: the adoption of Core Principles for End-of-Life Care by a substantial number of medical specialty societies. Also available in print: WB310 C27p
Format: Website
Provider: Milbank Memorial Fund
AARP's policies and research for topics in aging. Site includes hospices, death & dying, end of life issues, advance directives, funerals and wills & estate planning
Format: Website
Provider: AARP
